Patient perspectives of their leg ulcer journey
Abstract
Objective:
To understand the personal impact of venous leg ulceration from the patients' perspective.
Method:
Face-to-face, unstructured interviews were conducted with nine patient participants with venous leg ulcers. The interviews were digitally recorded, transcribed verbatim and, using thematic analysis, the themes and subthemes which impacted on quality of life were identified.
Results:
Four core themes were identified: the ulcer, symptoms, wound management and effects on daily life, with 16 subthemes that negatively impacted on quality of life (QoL) also identified.
Conclusion:
This qualitative study offers a valuable insight into the complex issues that impact on daily living for this patient group. The implications of the findings are far reaching and suggest that proactive symptom management and the fostering of a patient focus to consultations may improve QoL and encourage the patient to engage as an active partner in his/her management plan; both of which are explored in the subsequent phases of the larger study.
Declaration of interest:
This study was funded by West Midlands Strategic Health authority. The authors have no conflicts of interest to declare.
References
- 1 Living with leg ulceration: a synthesis of qualitative research. J Adv Nurs. 2007; 59: 319–328. Crossref, Medline, Google Scholar
- 2 A forever healing: The lived experience of venous ulcer disease. J Vasc Nurs. 1997; XV: 73–78. Crossref, Google Scholar
- 3 Health related quality of life in patients with venous ulceration: Use of the Nottingham health profile. Qual Life Res. 2001; 10: 693–700. Crossref, Medline, Google Scholar
- 4 Leg ulcers: a review of their impact on daily life. J Clin Nurs. 2004; 13: 341–354. Crossref, Medline, Google Scholar
- 5 Chronic ulceration of the leg: extent of the problem and provision of care. BMJ. 1985; 290: 1855–1856. Crossref, Medline, Google Scholar
- 6 Community clinics for leg ulcers and impact on healing. BMJ. 1992; 305: 1389–1392. Crossref, Medline, Google Scholar
- 7 . long term prognosis for patients with chronic leg ulcers: a prospective study. Eur J Vasc Endovasc Surg. 1997; 13: 500–508. Crossref, Medline, Google Scholar
- 8 Prevention of recurrence of venous ulceration: randomised controlled trial of class 3 and class 3 elastic compression. J vasc Surg. 2006; 44: 803–808. Crossref, Medline, Google Scholar
- 9 The prevalence of leg ulceration: a review of the literature. EWMA J. 2003; 3: 2, 14–20. Google Scholar
- 10 Trends in the incidence of venous stasis syndrome and venous ulcer: A 25-year population-based study. J Vasc Surg. 2001; 33: 1022–1027. Crossref, Medline, Google Scholar
- 11 Older women's experience of living with chronic leg ulceration. Int J Nurs Pract. 1999; 5: 189–198. Crossref, Medline, Google Scholar
- 12 How living with a leg ulcer affects people's daily life: a nurse-led study. J Wound Care. 2003; 12: 51–54. Link, Google Scholar
- 13
The costs of skin breakdown and ulceration in the UK. In: Skin breakdown – The Silent Epidemic . Smith & Nephew Foundation, 2007. Google Scholar - 14 Skin grafting for venous leg ulcers Cochrane Database Syst Rev. 2005; 1: CD001737. Medline, Google Scholar
- 15 Venous leg ulcers: the role of the GP and district nurse. Nurs Stand. 2000; 14: 40, 46–48. Crossref, Medline, Google Scholar
- 16 . Health related quality of life and chronic venous leg ulceration. Part one: qualitative studies. Br J Comm Nurs. 2009; 14: 12, S12–S17. Link, Google Scholar
- 17 Health related quality of life and chronic venous leg ulceration. Part two: quantitative studies. Br J Comm Nurs. 2010; 15: 3, S4–S14. Link, Google Scholar
- 18
The Good Research Guide for Small Scale research Projects . Open university Press, 2007. Google Scholar - 19 How many interviews are enough? An experiment with data saturation and variability. Field Methods. 2006; 18: 59–82. Crossref, Google Scholar
- 20 Using thematic analysis in psychology. Quality Res Psychol. 2006; 3: 77–101. Crossref, Google Scholar
- 21
Naturalistic Inquiry . Sage, 1985. Crossref, Google Scholar - 22 Living with a venous leg ulcer: a descriptive study of patients' experiences. J Adv Nurs. 1995; 22: 1092–1100. Crossref, Medline, Google Scholar
- 23 Disrupted lives: investigating coping strategies for non-healing leg ulcers. Br J Nurs. 2004; 13: 556–563. Link, Google Scholar
- 24 Elderly people's experiences: the meaning of living with venous leg ulcer. EWMA J. 2001; 1: 1, 21–23. Google Scholar
- 25 Living with a chronic leg ulcer: an insight into patients' experiences and feelings. J Wound Care. 2001; 10: 355–360. Link, Google Scholar
- 26 Leg ulcer, chronic leg ulcers, part 2: do they affect a patient's social life?s Br J Nurs. 2005; 14: 894–896. Link, Google Scholar
